AHDA Signs Onto Coalition Letter Urging Action on Harmful Copay Practices
The Alliance for Headache Disorders Advocacy is proud to join a broad coalition of patient and provider organizations in signing a letter to the White House Domestic Policy Council and the U.S. Department of Health and Human Services calling for action on harmful insurance and pharmacy benefit manager (PBM) practices.
The letter highlights how strategies like copay accumulators, maximizers, and alternative funding programs (AFPs) are shifting costs onto patients and creating barriers to care. These practices can lead to treatment delays, unaffordable out-of-pocket costs, and, in some cases, patients being forced to abandon medically necessary medications altogether.
For people living with migraine and other headache disorders, these barriers are especially concerning. Access to consistent, effective treatment is critical for managing symptoms, maintaining quality of life, and preventing disease progression. When coverage is disrupted or costs become unpredictable, patients can experience worsening attacks, increased disability, and avoidable emergency care.
By signing onto this letter, AHDA is reinforcing its commitment to addressing systemic barriers that stand in the way of care. We are working alongside partners across disease areas to push for stronger oversight, clearer protections for patients, and policies that ensure insurance coverage actually functions as intended.
AHDA is working tirelessly to protect patients and increase access to care for people living with migraine and headache disorders. Efforts like this coalition letter are one piece of a broader strategy to ensure that patients are not forced to navigate unnecessary hurdles just to receive the treatments they need.
You can read the full letter below.