Headache on the Hill 2024

Save the date!

March 18 - 19, 2024
Applications for our March 2024 in-person Headache on the Hill are now closed. Applications for our virtual fall advocacy day will open in the summer.

Take Action with AHDA to Combat Barriers to Care

Your voice has the power to make a meaningful difference in the lives of countless Americans living with headache disorders. We are calling on you to join us in advocating for critical healthcare reforms that can significantly improve access to care, reduce financial burdens, and ensure that patients receive the treatments they need promptly. This is an opportunity to share your unique perspective and experiences with your elected officials, emphasizing the real-world impact of Pharmacy Benefit Manager (PBM) reform, the HELP Copays Act (H.R. 830/S. 1375), and the Safe Step Act (H.R. 2630/S. 652).
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IT'S NOT JUST A BAD HEADACHE

“Feels like needles stabbing the back of my eyes. Enormous pressure around my head. Waves of nausea.”

Ranging from migraines and cluster headaches to new daily persistent headache and tension-type headaches, imagine living with pain and symptoms that others don’t understand or simply don’t believe is real.
Headache Disorder Resources

In 2021, funds from the National Institutes of Health (NIH) were 15 cents per person.

This is the lowest allocation for a common disorder. Due to a lack of NIH funding relative to the magnitude of the burden of these conditions, little research is being done.
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UNDER-ESTIMATED. UNDER-RECOGNIZED. UNDER-TREATED.

Headache disorders are an invisible epidemic. Ranging from migraines, cluster headaches, and chronic daily headaches to new daily persistent headache and tension-type headaches, nearly 90% of the US population suffers from some form of head pain. Yet we don’t hear enough about them. And yet, people with these frequently disabling conditions do not have access to the equitable care and rights they deserve. Quality medical care can be hard to find due to a lack of certified headache specialists. And research funding from the National Institutes of Health (NIH) for these conditions has the lowest allocation relative to its prevalence and economic burden (migraines alone are a leading cause of disability among people under 50). Enough is enough. Help us end the silence and impact change.

Learn More About AHDA and Our Mission

TOGETHER, WE VOICE OUR VISION FOR A BETTER FUTURE.

The AHDA advocates for fair policies at the federal level for people living with and affected by headache disorders in the United States. We believe bringing together and training a broad coalition of patients, providers, caregivers and researchers is the most effective way to drive widespread change. During our annual Headache on the Hill event, advocates from across the country engage with congressional lawmakers who have a say in policy changes, and the AHDA continues these conversations and actions through year-round advocacy. Personal storytelling helps lawmakers understand the impact of their decisions.

Learn More About Our Work

EVERYONE CAN BE AN ADVOCATE.

IF YOU BELIEVE IN OUR CAUSE, THEN WE NEED YOUR SUPPORT.

Headache disorders are in tremendous need of advocacy. We need people like you to speak up about their devastating impact. Your voice can help change minds and change legislation. Your actions can reduce stigma and transform patient care. Your support can make all the difference for millions in pain. Start now. Subscribe to our newsletter. Make a donation. Or consider these other ways to make a difference.

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