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The HEADACHE Act Offers the Promise of Hope

AHDA is leading the effort to pass the HEADACHE Act (Headache Equity and Access for Disabilities in Coverage, Education, and Health Act), the first federal legislation focused exclusively on headache diseases. The bill aims to close long-standing gaps in screening, research, workforce training, and treatment.

Contact Your Legislators in Support of the HEADACHE Act

Spring 2026 In-Person Headache on the Hill Applications are now Open

Headache on the Hill is the only professional development and federal advocacy day dedicated exclusively to advocating for equitable policies for the 40+ million Americans living with headache disorders. ⁠ Join us for our Spring In-Person Headache on the Hill in Washington DC on February 9th and 10th in Washington DC! No prior advocacy experience is required. Applications are now open. Can’t make it in person? Stay tuned for the next virtual advocacy day to come in the Fall of 2026.

Apply now!

“Feels like needles stabbing the back of my eyes. Enormous pressure around my head. Waves of nausea.”

Ranging from migraines and cluster headaches to new daily persistent headache and tension-type headaches, imagine living with pain and symptoms that others don’t understand or simply don’t believe is real. The Headache Alliance is the Alliance for Headache Disorder Advocacy's new sister entity which will focuses on education, public awareness and research.

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CURRENT INITIATIVES

HISTORY AND PROGRESS

Ways to get involved

HEADACHE ON THE HILL

UNDER-ESTIMATED. UNDER-RECOGNIZED. UNDER-TREATED.

Headache disorders are an invisible epidemic. Ranging from migraine, cluster headache, and chronic daily headache to new daily persistent headache and tension-type headache, nearly 90% of the US population suffers from some form of head pain. Yet we don’t hear enough about them. And yet, people with these frequently disabling conditions do not have access to the equitable care and rights they deserve. Quality medical care can be hard to find due to a lack of certified headache specialists. And research funding from the National Institutes of Health (NIH) for these conditions has the lowest allocation relative to its prevalence and economic burden (migraines alone are a leading cause of disability among people under 50). Enough is enough. Help us end the silence and impact change.

Learn More About AHDA and Our Mission

TOGETHER, WE VOICE OUR VISION FOR A BETTER FUTURE.

The AHDA advocates for fair policies at the federal level for people living with and affected by headache disorders in the United States. We believe bringing together and training a broad coalition of patients, providers, caregivers and researchers is the most effective way to drive widespread change. During our annual Headache on the Hill event, advocates from across the country engage with congressional lawmakers who have a say in policy changes, and the AHDA continues these conversations and actions through year-round advocacy. Personal storytelling helps lawmakers understand the impact of their decisions.

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EVERYONE CAN BE AN ADVOCATE.

IF YOU BELIEVE IN OUR CAUSE, THEN WE NEED YOUR SUPPORT.

Headache disorders are in tremendous need of advocacy. We need people like you to speak up about their devastating impact. Your voice can help change minds and change legislation. Your actions can reduce stigma and transform patient care. Your support can make all the difference for millions in pain. Start now. Subscribe to our newsletter. Make a donation. Or consider these other ways to make a difference.

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