Miles for Migraine Donates to AHDA

Alliance for Headache Disorders Advocacy (AHDA) President, Bill Young, MD., proudly accepted a generous donation from Shirley Kessel, the Philadelphia Miles for Migraine Chairperson. Shirley presented this check to the AHDA on behalf of the Miles for Migraine Foundation. 2014 was the second year that Miles for Migraine has chosen to support AHDA and their efforts at the Headache on the Hill event in Washington, DC.

During a first-ever advocacy visit by the Alliance for Headache Disorders Advocacy to their respective members of Congress in September, 2007, a group of mostly M.D./PhD research and clinicians in migraine and headache disorders, including AHS member and migraine patient Eileen Jones, RN, PHN, were given a challenge.

Legislative Aides of Congress Persons and Senators told these research specialists that their quest for an increase in the National Institutes of Health spending allowance for headache research grants was flat (only ½ of 1% of the total budget), and would not increase in the foreseeable future. Furthermore, they were discouraged to hear that they needed to build public support in their home cities and states, where until the citizens start to demand funding, things would probably not change in their favor.  In response to this Congressional challenge, Eileen decided to start a competitive race.

Miles for Migraine held its first 5K and 10K run and 2-Mile walk in the fall of 2008 in San Francisco’s Golden Gate Park with approximately 200 participants. Shirley has chaired the Philadelphia race since 2013.

Thank you Shirley, Eileen and all who continue to make Miles for Migraine a reality. The AHDA greatly appreciates your ongoing support.


AHDA Supports Migraine Documentary – “Out Of My Head”

“Out Of My Head”, is a work-in-progress documentary film which we believe will significantly heighten the profile of migraine, and raise awareness. Susanna Styron and Jacki Ochs have been making this film for over four years, and filmed at Headache on the Hill a few years ago. Now they are in the midst of a Kickstarter campaign to raise the funds they need to move forward into editing, more shooting, and eventually completion.

“Out Of My Head” reached its initial goal of $92,000 only two weeks in to a 30-day Kickstarter campaign thanks to an outpouring of support from the migraine community, and journalistic pieces like this in the New York Times:The filmmakers are determined to keep up the momentum until the campaign ends on November 23rd.

While they hope to raise additional funds toward completion of the film, the number of donors is equally important. Having a large number of backers will help to increase the visibility of the film upon release by creating broadcast interest, and the more people who see the film, the greater the benefit to the migraine community.

Please visit their Kickstarter page watch the video, read all about it, check out the rewards, and make a donation. No donation is too small (as long as it’s at least $1). Let’s help the filmmakers get this film finished and out into the world as quickly as possible, and all contribute to improving understanding of migraine.

Take Action!

SignPetitionThe petition to Congress asking them to hold the first ever Congressional hearing on the impact of Migraine, cluster headaches, and other headache disorders is still open for signatures. You can help by signing it AND by encouraging other people to sign it. We’ve prepared a one-page flyer that you can download then email to others or print and hand out. Download the flyer.

February 2011 Update

To date, the AHDA has organized three Headache on the Hill events:

  • September, 2007: 45 participants from 29 states visited 136 Congressional offices.
  • February, 2009: 35 participants from 27 states visited 127 Congressional offices.
  • February, 2010: 52 participants from 35 states visited 144 Congressional offices.

The next Headache on the Hill event is scheduled for May 31 and June 1, 2011.

For more about what the AHDA has accomplished, please see our February 2011 ADHA Overview.

July 2010 Update

We’re pleased to update you on the interim progress of 2010 AHDA legislative efforts.

As previously mentioned, 2009 AHDA efforts led to report language regarding headache disorders that was included in the fiscal year 2010 House appropriations bill (see report language). This report language specifically requested that NIH send a report on their progress towards defining Headache Disorders Research Benchmarks to the Committees on Appropriations. The NIH report that resulted from this congressional request outlined the NIH programs that have been available over the past several years for headache researchers, as well as the steps NIH has taken to organize the major research planning meeting which ultimately took place in Bethesda, MD on May 16th and 17th.

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