Largest Gathering of Migraine & Cluster Headache Advocates Seeking Improved Federal Policy
Washington, D.C. – March 18, 2021 – The Alliance for Headache Disorders Advocacy (AHDA), a non-profit dedicated to advocating for equitable policies for people with headache disorders, is pleased to announce its annual Headache on the Hill (HOH) advocacy day taking place on Tuesday, March 23, 2021. This year, for the first time, HOH will take place virtually via video conferencing and will bring together patients, providers, researchers, and caregivers for meetings with their Senators and Representatives.
Who: Patients, providers, researchers and caregivers in the migraine and cluster headache communities will be meeting with their Senators and Representatives from 47 states and 178 districts across the United States, including: Senator Patrick Leahy (D-VT), Chair of the Appropriations Committee; Senator Richard Shelby (R-AL), Vice Chair of the Appropriations Committee; Rep. Rose DeLauro (D-CT), Chair of the House Committee on Appropriations; Senator Jon Tester (D-MT), Chair of Senate Committee on Veterans’ Affairs; Senator Jerry Moran (R-KS), Ranking Member of the Senate Committee on Veterans’ Affairs; Senator Patty Murray (D-WA), Chair of the Senate HELP Committee; and Senator Richard Burr (R-NC), Ranking Member of the Senate HELP Committee.
What: Headache on the Hill is an annual advocacy event in Washington D.C. organized by the Alliance for Headache Disorders Advocacy, uniting health professionals, migraine and cluster headache advocates, and patients to present their legislative requests or “asks” of Congress.
Where: Typically held in person in Washington, D.C., this year the Headache on the Hill advocacy day will be taking place virtually, via individual video conference meetings, with each Congressional office.
When: Tuesday, March 23, 9:00 a.m. to 6:00 p.m. ET.
Why: Headache on the Hill exists to raise awareness about migraine and headache disease, providing an opportunity to those impacted to share their stories and help drive change in federal policy decisions through their advocacy.
2021 Legislative Asks
This year advocates from AHDA are meeting with the Members of Congress regarding two appropriations requests supporting Americans with disabling migraine and headache disorders. The first request is for a proposed line item in the FY22 HEAL initiative appropriations for NIH headache disorders research programs. The second request is for appropriations to expand the existing VA Headache Disorders Centers of Excellence (HCoE) system to ensure equitable access to specialty headache health care for all veterans in need of it.
About Alliance for Headache Disorders Advocacy
AHDA is a non-profit organization, founded in 2007, dedicated to advocating for equitable policies for people with headache disorders. The ADHA is comprised of 14 nonprofit organizations and is funded solely through the support of their member organizations, private donations and grants. To learn more please visit: https://https://allianceforheadacheadvocacy.org/
The Coalition for Headache and Migraine Patients (CHAMP) is a non-profit that provides support to people with headache, migraine, and cluster diseases who are often stigmatized and under-served. CHAMP is a member of the Alliance for Headache Disorders Advocacy. To learn more please visit: https://headachemigraine.org/
Christina Daigneault, Director of Communications, CHAMP
Media@headachemigraine.org | 917-207-4686
Katie MacDonald, Director of Federal Policy, AHDAinfo@allianceforheadacheadvocacy.org, 802-734-7598