AHDA Supports Migraine Documentary – “Out Of My Head”

“Out Of My Head”, is a work-in-progress documentary film which we believe will significantly heighten the profile of migraine, and raise awareness. Susanna Styron and Jacki Ochs have been making this film for over four years, and filmed at Headache on the Hill a few years ago. Now they are in the midst of a Kickstarter campaign to raise the funds they need to move forward into editing, more shooting, and eventually completion.

“Out Of My Head” reached its initial goal of $92,000 only two weeks in to a 30-day Kickstarter campaign thanks to an outpouring of support from the migraine community, and journalistic pieces like this in the New York Times:The filmmakers are determined to keep up the momentum until the campaign ends on November 23rd.

While they hope to raise additional funds toward completion of the film, the number of donors is equally important. Having a large number of backers will help to increase the visibility of the film upon release by creating broadcast interest, and the more people who see the film, the greater the benefit to the migraine community.

Please visit their Kickstarter page watch the video, read all about it, check out the rewards, and make a donation. No donation is too small (as long as it’s at least $1). Let’s help the filmmakers get this film finished and out into the world as quickly as possible, and all contribute to improving understanding of migraine.

Take Action!

SignPetitionThe petition to Congress asking them to hold the first ever Congressional hearing on the impact of Migraine, cluster headaches, and other headache disorders is still open for signatures. You can help by signing it AND by encouraging other people to sign it. We’ve prepared a one-page flyer that you can download then email to others or print and hand out. Download the flyer.

February 2011 Update

To date, the AHDA has organized three Headache on the Hill events:

  • September, 2007: 45 participants from 29 states visited 136 Congressional offices.
  • February, 2009: 35 participants from 27 states visited 127 Congressional offices.
  • February, 2010: 52 participants from 35 states visited 144 Congressional offices.

The next Headache on the Hill event is scheduled for May 31 and June 1, 2011.

For more about what the AHDA has accomplished, please see our February 2011 ADHA Overview.

July 2010 Update

We’re pleased to update you on the interim progress of 2010 AHDA legislative efforts.

As previously mentioned, 2009 AHDA efforts led to report language regarding headache disorders that was included in the fiscal year 2010 House appropriations bill (see report language). This report language specifically requested that NIH send a report on their progress towards defining Headache Disorders Research Benchmarks to the Committees on Appropriations. The NIH report that resulted from this congressional request outlined the NIH programs that have been available over the past several years for headache researchers, as well as the steps NIH has taken to organize the major research planning meeting which ultimately took place in Bethesda, MD on May 16th and 17th.

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